https://www.fapisrare.com/about daily 1.0 2020-10-13 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7e84940fa53c0223e6c214/1602127002099/wow.jpg About https://www.fapisrare.com/guidebooks daily 0.75 2020-10-11 https://www.fapisrare.com/research-library daily 0.75 2020-10-08 https://www.fapisrare.com/blog daily 0.75 2020-10-11 https://www.fapisrare.com/blog/miracles-and-diagnoses-happen monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f17c2f823ea59e115da60/1602164777488/Miracle+boy.JPG F.A.P. Journey - Miracles and diagnoses happen My son and me, weeks after my colectomy. I could not lift him for 8 weeks and had lost my breast milk from the surgery. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f18fa01ab814aa50a8ca7/1602176804704/20150518-118A8585-Edit.jpg F.A.P. Journey - Miracles and diagnoses happen My precious newborn son (2016). Prior to my last two months of pregnancy, I was asymptomatic. He saved my life. https://www.fapisrare.com/blog/raw-fap-and-mental-health monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f298ceda2500496a02383/1602169241042/F.A.P.+anxiety.jpg F.A.P. Journey - Raw: F.A.P. & mental health https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f5c1f1566f2751696a4a4/1602182272400/f.a.p.+polyposis.JPG F.A.P. Journey - Raw: F.A.P. & mental health I have sometimes cried at the thought of no longer being there for my son. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f5b1433b6227a6f23b476/1602182073773/Gastric%2Bpolyps.jpg F.A.P. Journey - Raw: F.A.P. & mental health https://www.fapisrare.com/blog/dealing-with-desmoids monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f7f901449f65ae7c77e88/1602421635337/Desmoid+tumor+abdominal+wall.png F.A.P. Journey - Dealing with Desmoids During a second teleconsult on October 6 to discuss results from the MRI, the doctor drew arrows to point to the cluster of desmoids in my abdominal wall. All he or I can really do is look on. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7f800fa6bcfe0aeccabf4b/1602191622124/CT+Scan+for+Desmoid+Tumor.jpg F.A.P. Journey - Dealing with Desmoids Entering a CT Scan at the local hospital. My desmoids were diagnosed in February 2020, just as Covid-19 was exploding around the globe. From here on out, my imaging will be done at major cancer centers, as it is their preference to use their own radiologists for rare things. https://www.fapisrare.com/blog/digital-fap-poetry monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7faca659670c4b65fc137c/1602202818757/Support+during+colectomy.jpg F.A.P. Journey - Digital F.A.P. Poetry My sister and support system during my colectomy—on top https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fa5d0bf106f48e577dc34/1602430434808/colorectal+screening+and+surgery.jpg F.A.P. Journey - Digital F.A.P. Poetry https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7faa86e2129337fe4f2873/1602430617535/People+with+f.a.p..jpg F.A.P. Journey - Digital F.A.P. Poetry Poem no. 1 My father says that I am a fine line__________________ that I can't be somewhere without water without a bathroom without a hospital and should wear a sign that says Fragile If I filter and fragment myself enough maybe I can become a painting-- or a Renaissance puzzle piece? Put one on your leg and one on your back so people can read and say "this girl is fragile" Like a box, when Fragile is there for people to know to not mishandle or break it when she is traveling We cannot fight the elements so we gotta keep low You should not travel They wouldn't know how to treat you in Europe in the hospital They'll put you in the corridoio Do you know what that is? A hallway / / Yes If I had a friend up there, my dad says, I'd ask them, Can you check on Domenica? I want to disappear from my problems; It would be a coward to disappear. https://www.fapisrare.com/blog/3-year-colectomy-anniversary monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7faefc59670c4b65fc5818/1602203393821/f.a.p.+interrupts+life.jpg F.A.P. Journey - 3-year Colectomy Anniversary https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fb1281cfdc86b7508e403/1602430673488/f.a.p.+polyposis+Sloan+Kettering.JPG F.A.P. Journey - 3-year Colectomy Anniversary April 18, 2016: So I'm here in the city for a major operation tomorrow/tues at Sloan Kettering. I'm staying upbeat and positive despite anxieties, thanks to lovely words and caring from my family and close friends. Please keep me and my baby who I will miss for a whole week [wound up being 2 weeks] in your thoughts. Just wanted to share with you all that the key to life really is Love: it helps so much with the long, windy road ahead. That's all, thanks! https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fb0f0e2129337fe50118c/1602203890212/ F.A.P. Journey - 3-year Colectomy Anniversary https://www.fapisrare.com/blog/emyogaem-called-to-me-post-colectomy monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fc0bb10d82a1925c5b381/1602208002062/Meerabai_painting.jpg F.A.P. Journey - Yoga post-colectomy मीराबाई (Mirabai) https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fbc9359670c4b65fe120f/1602209245428/patanjali+yoga+sutras.jpg F.A.P. Journey - Yoga post-colectomy Sanskrit: “Yoga is the stilling of the mind.” https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fb66386feca1a362d3b96/1602205341919/Still+recovering+and+healing.GIF F.A.P. Journey - Yoga post-colectomy My sweet son giving me so much love and strength (2019) https://www.fapisrare.com/blog/temporary-ileostomy-and-recovery monthly 0.5 2020-10-11 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fce0736dcbe6d1752e24c/1602211338712/ F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f8082292dd5aa08437758ac/1602257494433/ F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) July 2016: My son's baptism was scheduled for when I could lift him again https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fca8a31dd3d45739a7268/1602430900295/temporary+ileostomy+ostomy.JPG F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) August 2016: Ostomy change time—all new! https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fcd6a45255f310b8c8a0b/1602258181891/Recovery+from+j-pouch+surgery.jpg F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) Home after the colectomy and two weeks of recovery at MSK, I bathed my son in tears. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7fce18f9d32919bc7d6f69/1602211356469/my+little+angel.jpg F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f807c810148f62183be317d/1602430879978/size+of+stoma.PNG F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) April 2016: The ostomy nurse at Sloan Kettering teaching me how to change my ostomy. Here, we are measuring the stoma to be sure my skin is protected by the appropriate flange before putting on the new ostomy. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f807e4ea43d3f0fbb295590/1602256547384/preparing+for+ileostomy+reversal.jpg F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) September 2016: enjoying my son while preparing for my fourth surgery of the year, the ileostomy reversal https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f83286d7ba26763820a2d41/1602431096385/changing+ostomy.PNG F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f807a75189a8d22679761a2/1602430875814/j-pouch+recovery.jpg F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) 2017: My abdominal surgery scars after healing. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f832827553af93162bec527/1602431024307/ostomy+nurse.PNG F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f807d3f54fb8b31bc6b9f5e/1602430871252/ileostomy+take+down.jpg F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) September 2016: After the ileostomy reversal and take-down. I’d then learn to live with the j-pouch. https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f80842d5709f933d2b1a835/1602258037121/mother+and+son.jpg F.A.P. Journey - Temporary Ileostomy and Recovery (with a baby in tow) My lil angel and me in 2017 https://www.fapisrare.com/blog/category/Footwear monthly 0.5 https://www.fapisrare.com/blog/category/Fashion monthly 0.5 https://www.fapisrare.com/blog/category/Featured monthly 0.5 https://www.fapisrare.com/blog/tag/f.a.p. monthly 0.5 https://www.fapisrare.com/blog/tag/anxiety monthly 0.5 https://www.fapisrare.com/blog/tag/polyps monthly 0.5 https://www.fapisrare.com/blog/tag/colectomy monthly 0.5 https://www.fapisrare.com/blog/tag/diagnosis monthly 0.5 https://www.fapisrare.com/blog/tag/familial+adenomatous+polyposis monthly 0.5 https://www.fapisrare.com/blog/tag/genetic+disease monthly 0.5 https://www.fapisrare.com/blog/tag/polyposis monthly 0.5 https://www.fapisrare.com/blog/tag/ostomy monthly 0.5 https://www.fapisrare.com/blog/tag/desmoid monthly 0.5 https://www.fapisrare.com/blog/tag/apc+gene monthly 0.5 https://www.fapisrare.com/contact daily 0.75 2020-10-12 https://static1.squarespace.com/static/5f7e5fc89be6a01506795036/t/5f7e81ef344ec32a426467b3/1602126356677/Best+French+translator.jpg Contact